Hi all - been a while since I have updated this once again. Things have been pretty busy with trying to get back to reality (which involves work, home life, and Kaylee week on/week off). Its a lot but its time to get there.
I have begun cycle 3 of 30 of my infusion/pill chemo. To be honest, some of this has been rougher than just the regular chemo. Each cycle starts with a high dose of steroids and an infusion of vincristine. Basically that means for about 5-10 days I dont sleep from the steroids and the vincristine makes my fingertips and toes numb, so buttoning and other dexterity is affected. The other added bonus of the steroids is that is increases my blood sugar which basically gives me steroid induced diabeties. I feel tired and angry and all around just yucky. I am trying to get back to exercising but I havent found my stride and if I cannot sleep I will never get there. I am working on scheduling a sleep study with northside hospital to figure out what I can do to get this in order, as 27 more months is too long to go on like this.
With all this going on I have been also not very outgoing or been able to go to large gatherings as easily as I have in the past. I feel much more comfortable just being at home with my family or out doing small things. Maybe in time that will change but right now I am just going to take it as it comes.
The other thing that still weighs heavy on me is the accident where we lost Abby. She was our first dog and she brought so much life and energy to our lives. I still love and enjoy Noelle but I think because of how tragic it was I am still not over it.
I guess the long and short of it is that even though I am in remission, my journey through this is far from over. Maintenance is 2 times as long as the regular chemo and very taxing on my mind and my body. Trying to keep up with what medications I have and have not taken and when is a part time job in itself. Did you know they had pill containers this big? Well, now I do too.
So, thats where I am right now.
I would like to end on some positive notes however. I am still in remission and that is a huge blessing. I am in love with a great, caring, strong partner. I have an amazing child who surprises me daily. Noelle is becoming more comfortable with me every day. I have a tremendous support system of family and friends.
I also wanted to mention it is great to see people still donating platelets. With the current traffic situation in Atlanta it is needed now more than ever. Thank you truly to those that can donate and have kept going.
I have begun cycle 3 of 30 of my infusion/pill chemo. To be honest, some of this has been rougher than just the regular chemo. Each cycle starts with a high dose of steroids and an infusion of vincristine. Basically that means for about 5-10 days I dont sleep from the steroids and the vincristine makes my fingertips and toes numb, so buttoning and other dexterity is affected. The other added bonus of the steroids is that is increases my blood sugar which basically gives me steroid induced diabeties. I feel tired and angry and all around just yucky. I am trying to get back to exercising but I havent found my stride and if I cannot sleep I will never get there. I am working on scheduling a sleep study with northside hospital to figure out what I can do to get this in order, as 27 more months is too long to go on like this.
With all this going on I have been also not very outgoing or been able to go to large gatherings as easily as I have in the past. I feel much more comfortable just being at home with my family or out doing small things. Maybe in time that will change but right now I am just going to take it as it comes.
The other thing that still weighs heavy on me is the accident where we lost Abby. She was our first dog and she brought so much life and energy to our lives. I still love and enjoy Noelle but I think because of how tragic it was I am still not over it.
I guess the long and short of it is that even though I am in remission, my journey through this is far from over. Maintenance is 2 times as long as the regular chemo and very taxing on my mind and my body. Trying to keep up with what medications I have and have not taken and when is a part time job in itself. Did you know they had pill containers this big? Well, now I do too.
So, thats where I am right now.
I would like to end on some positive notes however. I am still in remission and that is a huge blessing. I am in love with a great, caring, strong partner. I have an amazing child who surprises me daily. Noelle is becoming more comfortable with me every day. I have a tremendous support system of family and friends.
I also wanted to mention it is great to see people still donating platelets. With the current traffic situation in Atlanta it is needed now more than ever. Thank you truly to those that can donate and have kept going.